Patient-led survey of people experiencing persistent neurological symptoms after COVID vaccination
Our first patient-led survey consisted of 508 participants who were suffering lasting neurological symptoms post COVID vaccination. This survey focused on demographics, symptoms, and outlook. We found that the majority of participants were women aged 35-45 with a wide range of debilitating symptoms. Most people reacted from the first dose while all brands led to neurological issues. Outcomes and prognosis were mixed and need further investigation and follow-up. Themes such as symptom patterns were further explored in our subsequent survey on persistent symptoms.
We at React19 believe that active monitoring of vaccine safety signals is essential. Patients deserve informed consent and a healthcare system that follows the principles of medical ethics. We call on international health authorities to further investigate potential harms from the COVID vaccines.
I was told I had lung mets in May 2021 turned out to be lung sarcoidosis and mortens nuromas – Pfzier adverse effect Mar 2022 – I had sarcoid in 1990
Also Neuro Sarcoid turns out to be brain mets – Pfizer May 2022 – 177 people in the trials had mets
Oncologist said when asked about numbess down my left side Feb 2021 and speech problem he had never seen Oesophargeal Cancer to Brain Mets – 2021 NED no evidence of disease across 4 scans but hey ho Pfizer state themselves Sarcoid and Brain Mets – I am a living example – no sigh of cancer anywhere else in my body after 30+ tests at the Royal Free in Feb/Mar 2022 – so 3 Pfizer vaccines in 2021 – Jan May Nov and boom Huston we have a problem.
Cyberknife radiotberapy has hopefully obliterated the 4 lesions after brain surgery to remove the first one April 30th
There will always be someone with a problem but I wish Doctors understood data snd stats a bit more – I am a qualified Data Analyst Level 4 – Distinction – Degree in Physiology , MBA , Computing Post Grad Systems Thinking and Accountant ACCA – I wish the consultant would stop and look at the data – has not even read the Pfizer data
Are there any organizations out there that can help with patient-led research around the vaccine and long COVID?