What was your life like before you received the COVID-19 vaccine?
I wasn't taking any prescriptions. I was healthy. Other than a painful L4 and L5
Describe the symptoms and the timeline of the reaction.
Started having pain in all my joints with headaches. Got worse everyday until my Dr. Told me to go to emergency at u of Michigan hospital because my white blood cell count was so high and it took opioids to stop pain.
Describe the solutions that helped your symptoms
After 3 days in hospital doctors tried 60mg of Prednisone and I started feeling better. Went home after 6 days in hospital and every test under the sun. By Jan 3rd I was back at u of m hospital because my left eye was going blind and at times I saw nothing but black in left eye. Stayed at hospital for 5 more days and received 1000 mg of prednisolone each day for 5 days. Rheumatologist started me on Actemra that treats Giant Cell arteritis even though the gold standard test I underwent during first hospital stay was negative. I am currently still injecting Actemra once a week and it has me feeling about 80 to 90 percent.
What would you like others to know?
Biden said on tv the vaccine was safe. I was not safe and I'm still not safe because the Actemra drug I'm taking stops my immune system from working and my Rheumatologist said I could die if I get an infection now so I don't go indoors with other people fearing I'll catch something. Doctors now tell me that they think the vaccine triggered an underlying desease called Giant Cell Arteritis.
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