What was your life like before you received the COVID-19 vaccine?
Describe the symptoms and the timeline of the reaction.
I started with mid back pain 7/8/21 that increased to excrutiating back pain the next night. I had numbness in my hands, feet and a band around my body at the chest level. I went to the ER and was admitted after the symptoms increased and I started to lose function in my legs. The following day I was diagnosed with Guillain Barre and moved to ICU and put on IVIG. I was paralyzed head to toe the following day. After 5 days I was sent to a large university hospital as the doctors feared I would lose lung function and need a respirator. I started to show signs of improvement at that point without additional treatment and five days later moved to an inpatient rehab hospital. I spent two and half weeks there and went home walking with a walker. I had POTS, gastro issues (coudn't keep food in me) and lost 30 pounds. In December I started to decline and additional nerve studies showed I had CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) and was started back on bi-weekly IVIG and two weeks ago stared on an additonal medication (Cellcept) in hopes of stopping the continued antibody attack on my nerves.
Describe the solutions that helped your symptoms
Which solutions were not helpful?
What would you like others to know?
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