What was your life like before you received the COVID-19 vaccine?
Describe the symptoms and the timeline of the reaction.
12-27-2020: Headache within hours of the vaccine that persisted. I noticed a visual tasks increased my headache. Very poor sleep despite good sleep hygiene.
Early January 2021: Tachycardia, heart racing
March 2021: orthostatic hypotension with position changes, elevated heart rate with position changes, shortness of breath, exercise intolerance, extreme fatigue with little effort
May 2021; diagnosed with inappropriate sinus tachycardia
May 2021: diagnosed with double vision
Summer/early fall: developed extreme fatigue, numbness and tingling in my legs and feet, sometimes hands. Increased sensitivity to overhead lights and screens, oncoming traffic lights
Sept 2021: joint pain, worsening tingling, numbness
Sept 2021: diagnosed with somatic symptom disorder (despite having been seen at my request to address any anxiety--most of which came from no one believing this was caused by the vaccine)
March 2022: optometry diagnosed no fusional reserve
April 2022: rehab vision specialist: likely cranial nerve 6 involvement, right eye weakness, alpha Omega pupil (and more)
March 2022: As I can do slowly do more, I notice if I put any 'elbow grease' into anything--walk up a hill too fast, for example, my lungs feel okay in the moment, but will burn for a few days. Same if I overdo it with activity that gets me breathing even a little hard
And still with fatigue after normal activities-slowly improving
Describe the solutions that helped your symptoms
Which solutions were not helpful?
What would you like others to know?
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