What was your life like before you received the COVID-19 vaccine?
Describe the symptoms and the timeline of the reaction.
On 12/23/20, I got my Moderna vaccine. I worked in a hospital, and I was scared of taking covid to my family. Plus, I knew they would require it eventually. I’ve always had issues with my mandatory flu vaccine, causing pain and fibromyalgia, but nothing like this. I immediately had a metal taste in my mouth. Then, I had big spikes in my heart rate and rapid heart rate for 2 days. On the third day, I was jogging on the treadmill, and my feet started to go numb. I called my husband, because it was so odd. Over the next few weeks I would go numb from my feet to my head. I tried to work and was falling over at work. I was told to go to the ER, but I knew covid was really bad in the ER, so I didn’t want to go. I could barely walk, my legs were so heavy. I couldn’t hold up a coffee cup, and I even ended up wearing a neck brace, because I couldn’t hold up my head. I had zaps in my head that woke me up multiple times during the night with flashes of light. It took a while to get in to see a neurologist. By then I could walk, but it was still difficult. My neurologist was amazing. She had suspected transverse myelitis, but there were no lesions on my MRI. After the numbness faded, I had severe nerve pain, deep into my bones. It was unbearable. I had tremors and what felt like a big rubber band around my right thigh above my knee. I was diagnosed with extensive damage to my small fibers, small fiber neuropathy. Later I would be tested for POTS and dysautonomia but was diagnosed with paroxysmal tachycardia and orthostatic hypertension. I have chest pain still and can no longer live an active lifestyle. I also have some cancer markers, high kappa lambda ratio, high kappa in my blood and urine and large amounts of protein in my urine. I’m being monitored by a hematologist oncologist for that.
Describe the solutions that helped your symptoms
Which solutions were not helpful?
What would you like others to know?
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