What was your life like before you received the COVID-19 vaccine?
Describe the symptoms and the timeline of the reaction.
In August 2021, our 16 y/o son received his Covid vaccine (Pfizer).
Right after his 1st shot he started complaining insomnia and fatigue.
After his 2nd dose, he started to feel pain in his legs, then in his arms. The pain got worse after a few days and weakness started.
Then he was unable to walk and in pain 24/24
He describes his pain as extreme sour muscle. (arms from shoulder to wrist, legs from thigh to ankle)
He also had some choking episodes.
Since October 2021 he was hospitalized 4 times (almost 10 weeks in total), had many medical tests (some conclusive, other not).
He spent 5 weeks in rehab.
He had some better days where he was able to stand and walk a little bit (with help) but he quickly has relapse
His level pain was 9 on his worst days, now it is between 4 and 6 depending
He has a lot of difficulties to sleep because of the pain.
His skin and muscles biopsie shows abnormalities.
His LP and cerebral IRM did not show anything
He also had some genetic tests to look at a potential explanation but nothing came back.
Since March 22, our son receives IvIg every 2 weeks. It helps a little (not all the time) but his all life is now impacted : he still can not walk by himself, is in pain 24/24, can not go to school, is exhausted all the time.
We have to assist him for everything.
Describe the solutions that helped your symptoms
Which solutions were not helpful?
What would you like others to know?
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