What was your life like before you received the COVID-19 vaccine?
Describe the symptoms and the timeline of the reaction.
I received my first Pfizer vaccine March 18th at the Wolstein Center in downtown Cleveland. On the drive home I noticed that my lower back hurt- almost like I had strained it. I thought that was strange, but not too concerning. 3 days later after a run I was really fatigued and my muscles were very sore. This lasted for 2.5 weeks. I saw my GP and he told me he thought I had allergies. On April 3 my feet felt like I was walking in Jello and my proprioception was bad. I went to the ER and they did routine labwork and sent me home. All looked good. 2 days later on April 5th I couldn't walk well, was very dizzy, my ears were ringing horribly, what felt like electric shocks going down my arms and legs and my chest hurt. I went back to the ER thinking I was having a heart attack. They did a chest xray, CT of my head and labwork. All was well they said. You're good to go home! I actually begged them to keep me so I could see a neurologist. They did keep me and early that morning a neurologist did a quick exam and said I didn't have GBS because my reflexes were hyper reflexive. I should go home and wait for it to pass. The neurologist said I should get my second vaccine because I don't want to get COVID. I progressed over the next few days to not being able to write my name because my hands were uncoordinated, brain fog, had no proprioception in my feet, so dizzy I swayed back and forth like I was on a ship, constant tinnitus, diarrhea, twitching and the "electric shock" feeling was worsening. I could not stand up , let alone work or exercise. After 4 months I had anxiety attacks that made me feel like I was going crazy. I had to see a psychiatrist and was put on Cymbalta. Over the next 6-12 months I saw another neurologist and the head of infectious disease at a large hospital in Cleveland. They both said it was a vaccine reaction, but I had to ask them that question straight to their face, they were not freely going to tell me that. The second neurologist said I had hemiparesis on my left side and advised me to get the next COVID vaccine. I had to ask him for MRI's and tilt table testing for dysautonomia. I have had much blood work, MRI's (with and without contrast), x rays, Lyme titers, EMG, tilt table testing, etc. I was diagnosed with hemiparesis and hyperreflexia and orthostatic intolerance. I was given 30 days of doxycycline in case of Lyme. Through my own research it seemed that I had developed ME/CFS and the infectious disease doctor said that he concurred and told me to never get another COVID vaccine.
Describe the solutions that helped your symptoms
Which solutions were not helpful?
What would you like others to know?
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