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Tara Taylor

What was your life like before you received the COVID-19 vaccine?

Just fine without concerns

Describe the symptoms and the timeline of the reaction.

12 hrs after vaccine woke up with transverse myelitis, subsequent myelopathy, and systemic non length dependent small fiber neuropathy bx proven. I had >35,000 tshds antibodies. I am severely ill. I woke up nearly paralyzed to my whole body the next morning after my second vax. I had systemic neuropathic pain. Screaming. I was packed in ice in icu. I have had 2 bouts of aseptic meningitis since then. Worst is a spot in my left shoulder blade. EMG shows extensive signaling here in size of a quarter they can't explain. It is eery and unexplained. Steroid and botox injections aren't helping. It may be possible I have "something there". I don't know. I'm not a crazy person like docs like to say to all of us. Rather I am a family nurse practitioner. I need help with this shoulder situation. Someone who believes in something not good happening here needs to take a look at what's happening in this shoulder. I think surgical removal and examination of the local issue may yield some serious information. Cellcept to prevent GVHD is the solution? This is bizaar and I need answers.

Describe the solutions that helped your symptoms

I am on: LDN 4.5 mg nightly Lamictal 400 mg daily Cymbalta 60 mg daily Lyrica 225 mg BID Cellcept 1000 mg BID IVIG 65 gm 4 x per month The lyrica, cellcept and ivig have made it so I don't want to end my life. But my life still isn't that great. I suffer greatly daily. It's a serious situation. Moderna destroyed my life. Terrible.

Which solutions were not helpful?

Plaquenil was tried before cellcept and didn't help.

What would you like others to know?

Cellcept is working Ivig helps Lyrica or gabapentin, any gaba-analog helps If others have a pin point part of their body bothering them,like my shoulder, this needs further exploration. I'm not saying microchip or any alien stuff, I mean a component of the vaccine lodged in our tissues triggering SFN, damaging the PNS?? Or maybe it is something stranger than that, I don't know anymore.
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The individual experience shared above is offered for informational purposes only. React19 neither endorses nor recommends any treatment(s) noted therein. React19 does not diagnose medical conditions, offer treatment advice, treat illnesses, or prescribe medicine or drugs. It is strongly recommended that, prior to acting upon any information gleaned from a shared experience, you first consult a physician.