What was your life like before you received the COVID-19 vaccine?
Describe the symptoms and the timeline of the reaction.
12 hrs after vaccine woke up with transverse myelitis, subsequent myelopathy, and systemic non length dependent small fiber neuropathy bx proven. I had >35,000 tshds antibodies. I am severely ill. I woke up nearly paralyzed to my whole body the next morning after my second vax. I had systemic neuropathic pain. Screaming. I was packed in ice in icu. I have had 2 bouts of aseptic meningitis since then. Worst is a spot in my left shoulder blade. EMG shows extensive signaling here in size of a quarter they can't explain. It is eery and unexplained. Steroid and botox injections aren't helping. It may be possible I have "something there". I don't know. I'm not a crazy person like docs like to say to all of us. Rather I am a family nurse practitioner. I need help with this shoulder situation. Someone who believes in something not good happening here needs to take a look at what's happening in this shoulder. I think surgical removal and examination of the local issue may yield some serious information. Cellcept to prevent GVHD is the solution? This is bizaar and I need answers.
Describe the solutions that helped your symptoms
Which solutions were not helpful?
What would you like others to know?
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