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J.H. – Minnesota

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Describe the symptoms and the timeline of the reaction.


I received my first Covid-19 Pfizer vaccine on April 22, 2021. Everything was fine until nine days later. I woke up on May 1, 2021 with a huge rash on both arms, swelling in my right arm and hand which is the arm I had the shot in, I felt this boiling hot sensation all over my body but did not have a fever, my lymph nodes were swollen, and a terrible headache. I went to the ER and the doctor said it was a delayed reaction to the vaccine. He told me to take Tylenol and it would probably be gone in a week. Over the week the hot feeling and headache went away. The rash took about two weeks to go away. Then I started having lots of swelling, weakness, numbness, and my veins were bulging out of my hand in a very startling way. These symptoms were all in my right arm and hand. I saw my general practitioner and he didn't know what was going on and told me it would probably just go away. I went to two different immunologists, a neurologist, and an infection control doctor. The immunologists put me on steroids which didn't help. That was all they could offer me as far as help. The neurologist did bloodwork and I tested positive for an autoimmune disorder but they don't know why because all the other inflammatory blood tests were negative and she said that doesn't make sense. She also gave me an ultrasound of my arm to make sure I didn't have a blood clot since my veins were unusually bulging out. I did not have a blood clot. The infectious disease doctor offered no help. I was told by all of the different doctors I've seen that they are all making it up as they go along and that they don't really understand how the vaccines work.

It's been over two months since I got the vaccine and I've lost most function in my right arm and hand. I have pain in my shoulder, elbow, wrist, fingers, and the muscles feel like I was hit with a heavy object. I have numbness in my thumb, index finger, and wrist. I can't write, drive, use it to feed myself. The pain and numbness is 24/7. It's very stressful because I don't know what the vaccine did to cause this and no doctors can help me. I am afraid I am going to be like this forever.

I only got one vaccine dose and all of this happened. I don't know what to do.

-J.H. - Minnesota"

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