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What was your life like before you received the COVID-19 vaccine?
I was overall healthy prior to October 2019. Only medicine I was taking on a regularly basis was a probiotic once a day. I have had one chronic issue my entire life, congenital dislocation of the patella. I still was able to walk, hike, bike and swim and be very active. At the start of Covid - Feb 2020, I was in the hospital with a Staph-Aureus infection (drug-sensitive), 12 weeks after reconstructive knee surgery in Nov. 2019. My infectious disease doctor told me that I was the healthiest staph patient he has ever seen. In May 2020 when operating rooms opened up, I had another extensive knee surgery removing all the infected mesh. That’s 3 knee surgeries in six months. By the grace of God, my knee implant was still untouched by any Staph infection. I was just thankful I could walk, bike and swim. In 2020, I counted being in doctor offices, hospital, etc. over 40+ times and never caught Covid. Covid was the least of my worries. I entered myself in the UT Health CARES (Coronavirus Antibody Response Survey) in September 2021. Thank goodness I did this to prove to doctors my symptoms that started June 7, 2021 from an acute attack – were not due to having Covid previously. My Antibodies report showed that I never had Covid until sometime in 2022 (not sure when, because I never tested positive for Covid). My Antibodies were now testing >2,500.
Describe the symptoms and the timeline of the reaction.
I was negative for Covid every time I was checked. They checked blood for a possible Staph infection that was negative. I was sent home with more antibiotics and told I had a Urinary Tract Infection (which I did not have). This started my long journey of doctors and ERs. Now I’m handing out “Turtles All the Way Down” and “Causes Unknown” book to many doctors who have surprisingly never heard of the books. I went from a complete vaxxer to an anti-vaxxer overnight.
Describe the solutions that helped your symptoms
I took Regeneron IV – Monoclonal Antibodies on 9/10/21, after a false negative PCR test taken. For 3 days, I had NO burning, tingling, itching, and my mind felt clear. But then within a week all the symptoms slowly came back. I told multiple doctors about this and always received a curious look and they didn’t know why. I’m glad to see other patients with SFN or nerve pain experienced the same reaction to Regeneron. Short lived as it was, this phenomenon was not in our heads.
Gabapentin (300 mg x 2 day) helped for almost 2 years, but I finally got off of it after many trials of withdrawal. Magnesium and Vitamin C are a must for me daily. Zinc, I had to completely get off of. For sleep, I have tried 1 mg Melatonin slow release and 1 drop of Low-Dose Naltrexone that helps stay asleep all night. I could not ramp up this medicine any more than that or I would feel more drugged. Ivermectin seems to help the symptoms. I didn’t notice how much until I got off. Currently doing Methylene Blue and Infrared Sauna lights (currently 30 minutes daily).
I have tried Low-Histamine diet, a No-Carb diet and eating clean helps the most. I did a food “sensitivity” test that showed I need to get off of dairy, some grains and certain nuts. That seems to help. No Caffeine. No Alcohol.
Light exercise –walking 1-2 miles daily, biking, light weights, and morning Qigong really helps in the morning.
Which solutions were not helpful?
Acupuncture (except needles in the head helped with brain fog for about 24 hours). I had needles stuck all over my back and neck. IV vitamins of Meyers cocktail, etc. I have not tried any high dosage of Vitamin C. Magnet therapy all over body. Lymphatic massage. Removed breast implants (Neurologist said “that won’t help”). Epidemic in women removing implants, which is a good thing. I have done over 40 HBOT treatments but they were not consistent in nature. May start again. In my journey, I tried Celebrex, CBD, Hydrocodone, Aleve, Advil, Valtrex, and soooo many supplements.
What would you like others to know?
It is hard to convince doctors that all these NEW symptoms I have are from the vaccine. Seeing that I got my attack close to 2-1/2 months after 2nd vaccine. After this 2 year journey my GP and my “latest” Neurologist agreed that I had a “perfect storm” of a Staph infection, being on Antibiotics for over a year and then the Vaccine most likely caused this effect of “Small Fiber Neuropathy and Chronic Fatigue”. I argue that the Staph infection was already long gone. Yes, my Gut Biome was screwed up after antibiotics, but the kicker was the Covid-19 viral load (and everything else toxic) in the vaccine. Told many doctors they should have tried Bactrim against Covid-19 also.
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