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S. – Ohio

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Describe the symptoms and the timeline of the reaction.

"May 24, 2021

My 12 year old daughter was a healthy 7th grader with no major medical issues other than dermatographia and ADHD which she was taking vyvanse to manage. She participated in the Pfizer vaccine trial for 12-15 year olds at our Children’s Hospital. She received her first dose in the trial on 12/30/20. The next day she had a fever of 101, felt tired and had swelling at the injection site but all of these resolved within a couple days. She received her second dose on 1/20/21. She had immediate pain at the injection site which didn’t happen with the first dose. About 18 hours after receiving the vaccine, she developed the following: severe muscle/nerve pain, painful electrical shocks down her neck and spine which caused her to walk hunched over, severe chest pain that felt like her heart was being pulled out, numbness and swelling in her vaccine arm (left), her fingers and toes turned white and were ice cold to the touch, the pain in her toes was so bad she walked on her heels, severe abdominal pain (especially on lower right side) and a fever of 101.4. We were instructed to take her to the ER at our Children’s Hospital where they did an ultrasound to check for appendicitis. The results showed there wasn’t any sign of appendicitis even though the appendix could not be visualized or the right kidney, her bladder appeared normal and a note that there was a diffuse gaseous filled bowel seen throughout the right lower quadrant. They did a renal profile that showed her potassium was slightly low (32) and her glucose was slightly high (110), they did not do any other blood tests. Her urine test showed a moderate amount of blood in her urine. She was given an IV, tylenol and zofran, then sent home.

Over the next 2.5 months her severe abdominal pain along with the muscle and nerve pain persisted plus she new symptoms including: fatigue, nausea, vomiting, abdominal distension, regurgitation of food and eventually the inability to swallow food or liquids, itchy rash on her arms, peeling skin on her feet, unexplained painful cysts on her vagina and then head, tinnitus, vision problems, headaches, dizziness, erratic blood pressure and heart rate, memory loss, brain fog, verbal and motor tics, fainting/seizures (10+ a day), loss of feeling from the waist down then paralysis of her legs, inability to walk, muscle weakness, abnormal gait, gastroparesis, urinary retention, anxiety, and medical PTSD. Additionally she started her first menstrual cycle on 2/5/21 which continued off and on for over a month with clumps of blood and then off and on spotting until 4/13/21 and nothing since then. Between 1/21/21 and 4/9/21 we had to take her to the ER nine (9) times and she was admitted to the hospital 3 times. In between hospital visits she has seen multiple specialists at the Hospital and had Physical Therapy and Cognitive Behavioral Therapy with no improvement, instead she continued to decline..

After several desperate calls to multiple doctors expressing our concern for her declining health and more ER trips we finally got help from our new Care Coordinator to have neurology guarantee she would be admitted if we went to the ER on 4/9/21. When she got to the ER on 4/9/21 she could not walk, was unable to feel or move below her waist, had tachycardia and her blood sugar was at 47. Once she was stable they admitted her to neurology and then transferred her to Inpatient Rehabilitation on 4/13/21. As of today, 5/24/21, she is finally close to being able to walk without a walker but she still has an abnormal gait. She also still has an NG tube for nutrition and continued problems with urination and gastroparesis, not to mention the PTSD from this experience with doctors, especially in the ER and Pfizer Vaccine Trial, doubting her and treating her like a mental patient. Right now every Wednesday and Friday, she has to meet specific PT goals. If she is unable to reach these goals, she will be discharged to follow-up outpatient primarily with Pain, GI, Adolescent, and psychology. If she is to be discharged, outpatient will focus much more on mental health. NOTE: the words in italics are directly from her medical chart.

My daughter has gone from being a typical healthy 12 year old girl who worried about doing well in school and loved hanging out with friends to being so ill she had to miss 4 months of school. She has been in the hospital for almost 2 months total where she celebrated her 13th birthday. She is the strongest person I know and I am so proud of her for pushing through this nightmare and never giving up. There is no doubt in my mind that the vaccine caused this. All of these medical problems started less than 24 hours after the second dose of the Pfizer covid vaccine and did not just go away within 72 hours like they say. She was not forced to do the vaccine trial, she asked to do it along with her 2 brothers so she could help get our world back to normal. The only diagnosis we have been given is Functional Neurological Symptom Disorder with mixed presentation, acute episode in which the vaccine was likely the trigger, no explanation as to why the vaccine triggered it. They have dismissed her having repetitive abnormal blood work and that she has had blood in her urine countless times over the past 4 months, even with a catheter.

Once she was given the Functional Neurological Disorder diagnosis they stopped any further testing that could and should have been done and any new doctors already had a bias from reading her medical record. She is not even close to being functional and that is with over a month of top notch inpatient rehabilitation which has included PT/OT/Recreational Therapy/Music Therapy, Speech Therapy and Cognitive Behavioral Therapy. We have a family meeting today to discuss her discharge on Friday, May 28th. We are desperate to get her treatment that will help her get back to the healthy 12 (now 13) year old girl she was before she got the Pfizer vaccine. I was told her case was included in Pfizer’s final report on the trial for 12-15 year old children but they did not share the end diagnosis and all of her symptoms. They summed it up as functional abdominal pain with ongoing investigation, it was MUCH more than that! We do not want this to happen to more innocent people, especially children!

S - Ohio"

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