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Sara J

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What was your life like before you received the COVID-19 vaccine?

I was in a 12 year remission from rheumatoid arthritis and fibromyalgia. My IBS-C was well managed with Rx, supplements, lifestyle and diet. I was jogging/walking 3 mi, 3-5 times per week. I was socially and sexually active. I was engaged in other hobbies and creative projects. I worked full-time. I was engaged in my personal romantic relationship, family and friends relationships, and looked forward to more public health safety to return to the new normal of real life. I was fitter and thinner (healthy weight) than I've ever been since my teenage years.

Describe the symptoms and the timeline of the reaction.

Suddenly woke up will all Sx of interstitial cystitis. Sudden urinary urgency and incontinence. Burning before and during urination. Bloating, distention, and pelvic pain. Also, sudden hemorrhoid and anorectal pain.

Also, widespread myalgias, neuralgias, arthralgias, acute and debilitating anxiety and depression, brainfog, cognitive problems, memory problems, executive dysfunction, chest pain (under right ribs, under left ribs), sore throat, feeling feverish without fever, outbreak of acute seborrheic dermatitis, facial pain, atypical migraine, visual disturbances, nightmares, and others.
These symptoms showed up almost all at once and rose and fell together, but also shifted in activity, like an orchestra playing a piece. All instruments are present and come in at different times.

Describe the solutions that helped your symptoms

I tried many things and many tests with my PCP. Nothing helped dramatically. Somethings helped somewhat or briefly. Vitamin C, steroids, xanax, qigong, disability leave to rest. I don't remember very much else helping.

Which solutions were not helpful?

Paxlovid, malnupiravir

What would you like others to know?

It's real, it's science, it's not political, there's too many of us who are educated and credible not to be taken seriously. And we can't work. We're no longer participating or contributing to society. It's the world's best interest to get us well.

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