What was your life like before you received the COVID-19 vaccine?
Describe the symptoms and the timeline of the reaction.
I have an autoimmune disease called relapsing polychondritis but not on immune suppressant drugs as well as a slow progressing gene eye disease called retinitis pigmentosa.
I got my vaccine at 3:00, after dinner and clean up suddenly I had a brown zig zag line appear in my right eye peripheral vision but then it went away. 2 weeks later I noticed changes to my vision but wasn’t overly alarmed. May 9th somehow I got strep throat. Went on antibiotics. On May 13th I was convalescing on the couch when I had this huge rush of floaters. I started getting worried. I tried to find an Ophthalmologist but because of shut down it was months away.
Starting around mid June to the beginning of August I was living a true nightmare. Pain in my left eye, painful to move my eyes side to side. It felt like electric shocks going through my brain, amber vision, depth perception and balance issue and I was losing vision.
When I finally got in to see the Ophthalmologist August 20, he didn’t believe my vision loss had anything to do with the vaccine. He sent me for an ERG. When the results came in he called me and said , “ this is serious, this is really serious-bilateral retinal dysfunction is wide spread. This is a serious problem involving your rods and cones and colour vision. Pretty significant. Don’t see any inflammation but you have scarring.” Then he had the gall to say “ I can’t understand why you didn’t notice this before.”
I saw my Rheumatologist that September. He believed me and believed it was a Complement activation. He ordered blood work. The results showed super high platelet count, low complement 3 levels and low immune , like I was immune compromised. And what was strange was I hadn’t had any flares from the autoimmune disease since the end of April.
I got shingles . I also have a rash on my back just waiting to get in to see the Dermatologist.
Describe the solutions that helped your symptoms
Which solutions were not helpful?
What would you like others to know?
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