- Tagged with:
- Heart Issues
- Brain Fog
- Tremors or Twitching
What was your life like before you received the COVID-19 vaccine?
Describe the symptoms and the timeline of the reaction.
Six weeks following my second Pfizer vaccine on April 1st, 2021, I developed facial twitching. Then, after two weeks of the unexplained facial twitching, I was just running some errands and I was stopped dead in my tracks but an electrical shock feeling that felt like my entire body was doused unexpectedly by an ice-cold bucket of water. It made me a little queasy and lightheaded and I wasn't sure what it was. It continued for a few more weeks off and on until June 16th when I got that same sensation but the tingling throughout my body never stopped and has continued to this day (4/25/22).
On top of the tingling feeling, over the last 10 months, the nonstop tingling/numbness that's 24/7 has continued and I've developed more twitches, neuropathy, facial twitching, tremors, blood pressure issues I've never had before (jumping and dipping like a roller coaster), dizziness, extreme weakness and fatigue, serious brain fog, worst depression I've ever had, I've fallen several times as well, and so much more. I’ve been told not to drive so I’m not going anywhere, which is difficult because I don’t like to be in one place for too long. I can only work about 90 minutes at a time because it wears me out and I never know from day to day how I’m going to feel.
I've had 5 MRIs, 5 CTs, 2 nerve conduction tests, a spinal tap, EKGs, a million X-Rays and scans, and a ton of bloodwork. All of which have come back relatively normal....... yet every day for the last year, all of it continues and I'm steadily getting worse. There have been days that I literally thought I was dying.
I've been told by doctors that I have had a stroke, a TIA, MS, Lupus, Lyme Disease, multiple myeloma, a Chiari 1 malformation (which is only fixed by brain surgery BTW), nervous system issues, and transverse myelitis. Last week, after a year, a neurovascular specialist diagnosed me with autonomic neuropathy (which he claims is permanent) and dysautonomia (most likely POTS). As I write this, I'm waiting to hear back from a specialist locally here at the University of South Florida in Tampa and I have an appointment with a neurologist at the Shands Medical Center at the University of Florida in Gainesville.
I have no clue what to expect.
Describe the solutions that helped your symptoms
Which solutions were not helpful?
What would you like others to know?
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