What was your life like before you received the COVID-19 vaccine?
Describe the symptoms and the timeline of the reaction.
Symptoms: Neuropathy pains- burning, freezing, numbness, pins and needles. Numb face. Bradycardia and tachycardia. Chest pains and troubles breathing. Extreme fatigue and headaches. Muscle and joint pains. Cramps, spasms, tremors, twitching. Widespread pain across my body. Feeling like im going to pass out. Tinnitus. Extreme dry eyes and dry mouth. Cognitive decline. Memory issues and struggle processing information. Eye floaters,pain and objects shaking from the corner of my eyes. Gastro/digestive issues. Frequent urination. Sensitivity to light and sounds. Bleeding gums. Rashes. No longer able to eat the food that I used to. Balance issues. Extreme depression and anxiety. Struggles sleeping and getting rest. Lost quality of life.
Timeline : 6-22-2021. I got the shot and I saw blood go back in the syringe. I immediately got a metallic taste in my mouth, my face went numb and I felt like I was going go pass out. I contemplated calling for ambulance, but I didn't want to make a scene...
The next day I go to ER feeling like im going to have a heart attack. They dismissed it as anxiety. 8 hours of waiting, only for them to send me home. My Feet are tingling and numb. I have Weakness in my body and high heart rate and chest pains and trouble breathing. Extreme headaches. I went to the ER the next 2 days in a row. They finally did a CT scan of chest.
As time continues to to on my Neuropathy pains increased. Electric shocks in hamstring. I couldn't sleep. Extreme headaches. Balance problems. Extreme fatigue and anxiety. Chest pain, Shortness of breath and bradycardia and tachycardia. I kept feeling like I was going to have a heart attack. I would be sitting on the couch with my heart rate around 144BPM or around 50bpm.
I start seeing neurology, I ask for an EMG. Normal results. I ask for EEG. Normal results. He says he feels this is an adverse reaction to the shot, but doesn't document it on paper. This is the start of the doctors saying " it's an adverse reaction, ride it out."
I go into urgent care some time around a month after shot at this point. Still same symptoms. They did chest xrays again, more blood work, but still no obvious red flags. Neuropathy. Muscle and joint pains. Extreme fatigue and headaches. Chest pains ...etc.
I couldn't play guitar or work a normal job anymore. I had got a new job as a manager right before the vaccine, but lost it from health issues.. I struggled to get by. I stared a go fund me. I start doing uber eats to just try to work when I felt okay enough to drive. The first 4 months I don't think I worked at all or was limited to occasional uber eats orders.
I had to spend a lot of time researching my symptoms and asking my doctors what to test for. I continued to feel like they were not proactively trying to help me. They kept saying " its an adverse reaction, ride it out." They boxed me into a category of they don't know and stopped trying to figure it out. So I was determined to find tests for them to run so I could get a real diagnosis. I had lupus and rheumatoid arthritis tests show positive then negative then positive then negative. Small fiber neuropathy was negative. Blood labs for basically all normal for standard blood test stuff.
A couple months in at this point I had asked one of my doctors to submit to VAERS. I said everyone is telling me to my face it's an adverse reaction, but everyone is putting in visit summary as " patient feels it's a reaction to the vaccine." My doctor said she was affraid to submit to VAERS in concern it would cost her her job.... I had to show her the cdc side that says they are required to submit to VAERS. Vaers has me documented as permanently disabled. Moderna lot number 050c21a.
One of the tests I had requested was a weird one, but I wanted to rule out any potential consituon I felt was a possibility based on the symptoms. I thought that maybe, in some super, extremely unlikely chance, that the person who administered the shot possibly reused a syringe and that I got something from that, considering all my other tests were normal. I asked my doctor to do a full STD test, while keep in mind I have no activity to correspond with any tests. I am not sexually active and do not share or use needles... My test comes back HIV positive. August 3rd 2021. I am still traumatized. She tells me go go to ER and says the Extreme headaches could have been HIV enciphalitis. Right before this HIV positive tests, I was having headaches so bad I thought I was going to die. ER dismissed as migrane headaches. Anyways, I had 5 or 6 HIV false positive tests show positive over 103 days before it now is negative.... 6 false positive tests. I was diagnosed with HUV, then undiagnosed.....My Infectious diseases doctor said he has seen more of these false positives from the shot. He told me he believes these are false positives from the shot. It took him around 80 days for him to say that he's seeing other patients of his with these false positives. He told me 12- 15 patients of his had false positives and the lab they used to test abnormal tests has seen around 50. ( granted, to be fair, i sont know if he was just telling me that hes aeen other cases like mine to try to reassure my or calm me down that im not the only one. I obviously havent seen any other patients of his or their lab work. I cannot confirm his statments, i am just repeating what he told me. I wanted to record my conversation with him, but it is not allowed in my state without them agreeing and i figured he would not want to be recorded naking those statements, so i never asked) that was the data back in August of 2021. Who knows what it's at now. The p24 kept testing positive. No antibodies or viral load. I still have PTSD from that phone call. I think that stress made all my symptoms worse.
Anyways, moving past that, I have the had the same symptoms up until the end of the year 2021. Neuro pains: burning, freezing, numbness and tingling, pins and needles, shocks . Muscle joint pains. Extreme fatigue. Bradycardia and tachycardia. Eye pains. Dry eyes and mouth. Rashes. Headaches Bleeding gums. Depression and anxiety. All this extremely weird stuff. I still can't eat normal foods.
Fast forward up until recently in 2022. My baseline health is much worse. Neuropathy pains are constant. My feet are always on fire. Calf muscles are on fire. Biceps and forearms are on fire. Brain randomly feels cold. Eye pain. Dry mouth and eyes. Muscle and joint pain. Cramps spasms. Twitches. Pain in feet walking comes and goes. Extreme fatigue and headaches. Extreme depression and anxiety. Still can't eat normal foods. Bradycardia and tachycardia. Chest pains. Shortness of breath. Objects occasionally shake from corner of eye. Floaters. Tinnitus. Pins and needles in hands and feet. Sensitive to light and sound. Rashes. Muscle joint pain. Extreme cognitive decline. Forgetting what I said or am trying to say. Failure to remember things. Exhaustion.
All tests still continue to show normal. Only thing truly identified on lab work is now I am IGA deficient and my IGG is extremely high. I have been speculating that I have multiple sclerosis or transverse myelitis since like 2 weeks after I got the shot. They still have not done a spinal tap, even though they said they would have done it after the small fiber neuropathy test was done around the end of 2021.
I have no quality of life. I often think that the vaxx should have just taken me out when I got it. I can't play guitar much at all anymore and it's the only thing I had in my life to make me happy. I just need help I want to be happy again. I want to wake up and not be in pain. I want go enjoy life again. My doctors are not helping me. I hope every single person that is going through this fight is cured and we can all be happy and healthy again. Nobody deserves this.
Thank you for taking the time to read my story and mt experience.
Describe the solutions that helped your symptoms
Which solutions were not helpful?
What would you like others to know?
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