S.T. – Washington
Describe the symptoms and the timeline of the reaction.
Entry Date: 6/21/21
I have been to the hospital 9 times, neurology twice, next appointment is tomorrow, my GP twice, a naturopath, trying to get a referral for a rheumatologist and immunologist. I have had an MRI, CT scans, extensive bloodwork. Everything came back fine except a positive ANA blood test result indicating an autoimmune disorder. I have a nerve test tomorrow.
Diagnosed Bipolar last November after severe depressive episode. Taking medication, have a therapist, life coach and psychologist. I am NOT anti Vax. I am FOR #informedconsent
UPDATE May 30th 10:28pm: see bottom of post
Posting this as a way to record my journey, get my story out there as a warning as to what could potentially happen and to maybe find someone who is experiencing the same thing
April 27th: Got 1st pfizer vaccine
May 3rd: severe menstrual bleeding and menstrual pain (more than I normally have with endometriosis) for 4 days. Partnered with severe muscle weakness, aches and fatigue.
May 5th: Go to hospital after fall in shower when all of my muscles gave out all at once. Was very dizzy, disoriented and lightheaded. Left hospital with no answers, bloodwork clear, MRI clear and no meds. Given a referral to a neurologist. Still having daily muscle weakness and aches after exertion, easy fatigue and headaches.
May 7th: Neurology appointment. She seems hesitant to believe me and goes ahead with more in depth blood work. I was told to NOT get the second vaccine. Still suffering daily muscle weakness and aches after exertion, easy fatigue and headaches.
May 10th: Went to hospital due to severe pain in entire body, feeling like I'm sick and dying. All bloodwork and urine test comes back normal and discharged with no answers and no meds. Still suffering daily muscle weakness and aches after exertion, easy fatigue and headaches.
May 13th: Second neurology appointment goes well. She states she believes me and refers me to a chronic fatigue clinic and to get a nerve test done(scheduled a month and a half out). Left with no answers and no meds. Still suffering daily muscle weakness and aches after exertion, easy fatigue and headaches.
May 19th: Go back to hospital due to persistent symptoms getting worse, not being able to function and wanting answers. Run bloodwork again, comes back normal. They say ""well... Let's try something I guess"". Leave with no answers but meds this time! (anti inflammatories) 👍I end up having a severe allergic reaction to the anti inflammatories (rashes and severe itching). I have NEVER been allergic to anything in my entire life (other than the seasons). Stopped taking medication.Still suffering daily muscle weakness and aches after exertion, easy fatigue and headaches.
May 27th: After having intercourse, I experienced extreme right side pelvic pain and back pain. Thought it could be because of my endometriosis since it is a symptom but this pain I had never felt before. Went to the hospital crying, not sure what's happening to my body. No answers and gave me anti anxiety meds IV and then sent me home with no meds. Still suffering daily muscle weakness and aches after exertion, easy fatigue and headaches.
May 29th: Went camping for the weekend yesterday and had an amazing time planned, even though we were planning things to not exert myself too much since, I am still having fatigue, muscle weakness and headaches. Did not drink at all during camping, stayed hydrated. I was woken up at about 4am by the worst headache I have ever experienced.
The left side of my face was in pain all the way to my shoulder. My brain felt like it was burning and I had severe vomiting. We immediately left the campsite to get somewhere to call an ambulance. After a CT scan they tell me it was ""most likely"" a cluster headache even though I have only had small annoying headaches my whole life, I have NEVER experienced a headache/migraine like that. I truly thought I was dying. Sent home with no answers and anti nausea medications.Still suffering daily muscle weakness and aches after exertion, easy fatigue and headaches.
May 30th: Back in the hospital (went to a different hospital this time) with severe abdominal, pelvic and lower back pain on top of my other chronic symptoms. Also my abdomine is so extended I look like Im pregnant. Sharp stabbing pain and feeling extremely bloated. Just had a CT scan done of my abdomen with dye, running bloodwork, xrays done and EKG.
Diagnosed as a ruptured ovarian cyst, unrelated to other chronic symptoms I've been experiencing fir the past month, per the doctor. Discharged with anti nausea and pain meds.
Idk what to do or think anymore and it just seems too coincidental that all of this is happening after the vaccine. My neurologist and I have ruled out almost everything except Chronic Fatigue syndrome and fibromyalgia but I obviously have no been diagnosed and am not 100% sure what these symptoms could be.
S.T. - Washington"
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